Detalles del Título
Detalles del Título

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Título Achieving justice in genomic translation: rethinking the pathway to benefitLibros / Impreso - Libros
Autor(es) Burke, Wylie (Editor)
Edwards, Kelly (Editor)
Goering, Sara (Editor)
Holland, Suzanne (Editor)
Trinidad, Susan Brown (Editor)
Publicación New York, NY : Oxford University Press, ©2011
Descripción Física x, 212 páginas ; 24 cm.
Idioma Inglés;
ISBN 9780195390384
Clasificación(es) 174.296042
WB60
MEDICINA
Materia(s) Genética humana - Investigación - Aspectos morales y éticos; Investigación; Bioética; Genoma humano - Aspectos morales y éticos; Pruebas genéticas - Aspectos morales y éticos; Predisposición genética a la enfermedad;
Nota(s) Incluye referencias bibliográficas e índice.
CONTENIDO: Making good on the promise of genetics : justice in translational science / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The social, political, and economic underpinnings of biomedical research and development: a formidable status quo / Patricia Kuszler -- The input-output problem: whose DNA do we study, and why does it matter? / Stephanie Malia Fullerton -- The autism genetic resource exchange: changing pace, priorities, and roles in discovery science / Holly K. Tabor and Martine Lapp. Commentary on the discovery phase of research / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Early assessment of translational opportunities / Patricia Deverka and David L. Veenstra -- The power of knowledge: how carrier and prenatal screening altered the clinical goals of genetic testing / Nancy Press ... [et al.]. Commentary on the development phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Integrating genetic tests into clinical practice: the role of guidelines / Anne-Marie Laberge and Wylie Burke -- Genomics and the health commons / Nora Henrikson and Wylie Burke -- Commentary on the delivery phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The role of advocacy in newborn screening / Catharine Riley and Carolyn Watts -- What outcomes? whose benefits? / Wylie Burke and Nancy Press. Commentary on the outcomes phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Bringing the best science to bear on youth suicide: why community perspectives matter / Rosalina James and Helene Starks.
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Disponibilidad
CodBarras Localización Piso Signatura Estado Categoría
115287Biblioteca Universidad Icesi3174.296042/A178aDisponibleCol. General